Hi all,
I have recently received a mass mail which I usually would have ignored. It attracted my attention anyway, as it featured a young baby with very complicated illness.
Anyway, here's the website,
http://www.babyhome.com.tw/YenHsi. It's mainly in Mandarin.
Pictures of the baby since birth are also available at
http://www.babyhome.com.tw/album.php?mid=37409.
Hope I am able to contribute my bit of help to the family by spreading these links.
And if there is anyway you can help the family to get access to Excegran - a restricted medicine that is only available in Japan, please try to contact the family at 0922-468181.